The following are areas where we have noted excellent and innovative practice at CSEP accredited hospitals

  • Gathering patient feedback about their experiences of clinical trials
  • Actively recruiting patients from different ethnic backgrounds
  • Having research nurse(s) present in myeloma clinic

If you want to find out more, or are interested in developing one of these areas at your hospital, please contact the CSEP team at csep@myeloma.org.uk

Clinical trial access for myeloma patients

Professor Kamaraj Karunanithi, Consultant Haematologist at Royal Stoke University Hospital, tells us about widening access to clinical trials for myeloma patients, and why a patient-centred approach to equitable access is vital Could you explain how clinical trials for myeloma patients at Royal Stoke started? I started leading the myeloma service in 2010 and wanted to…

Beyond the trial protocol: the role of the research nurse within the myeloma team

Suriya Kirkpatrick, Senior Cancer Research Nurse at Southmead Hospital, North Bristol NHS Trust, tells us about her role, how she works closely with the myeloma MDT, and the holistic care she provides for patients undergoing clinical trials. How did your role develop? I began my career by qualifying as a nurse and a midwife and…

Welsh National Myeloma Dashboard: harnessing the power of patient data

Dr Ceri Bygrave, Clinical Lead for Myeloma at the University Hospital of Wales, takes us through the creation of the Welsh National Myeloma Dashboard and explains why harnessing real-world data is key to improving patient treatment and care. What is the Welsh National Myeloma Dashboard? The Welsh National Myeloma Dashboard is a place to store,…