The following are areas where we have noted excellent and innovative practice at CSEP accredited hospitals

  • Obtaining myeloma specific patient feedback and implementing changes to service delivery in response to findings
  • Training a CNS in prescribing
  • Running nurse-led clinics

Below are links to articles healthcare professionals have shared with us about their service. If you want to find out more, or are interested in developing one of these areas at your hospital, please contact the CSEP team at csep@myeloma.org.uk

Using the MyChart patient portal to improve myeloma patient experience

Helen Goad, Lead Clinical Nurse Specialist (CNS) for Haematology at Addenbrookes Hospital, discusses the use of MyChart, an online portal that allows patients to see test results, clinic appointments and letters, and send messages to the myeloma team. Could you explain how the service started and what prompted it? The MyChart portal was set up…

Nurse-led MGUS clinic using My Medical Record portal

Ruth Jackson, Haematology Nurse Clinician, discusses setting up and leading a nurse-led MGUS follow-up clinic for patients at Mersey & West Lancs NHS Trust using the online portal My Medical Record. Could you explain how the service started and what prompted it? I have worked in Haematology in various roles for over 23 years within…

Haematology pharmacy in Hywel Dda University Health Board

Haematology Pharmacist Pete Baker explains the dedicated support he provides for myeloma patients across Hywel Dda University Health Board. Pete specialised in myeloma for a non-medical prescribing degree at Cardiff University. Could you give a summary of your role as Haematology Pharmacist? My roles and responsibilities have evolved significantly over the past three years from…

Haematology Outreach Nursing: reflecting on 20 years of community care

Haematology Outreach Nurse Specialists Helen Walker and Claire Beevis look back on 20 years  of the outreach service at James Cook University Hospital and tell us how they adapted the service to meet patient needs during COVID-19. Helen Walker (Lead Haematology Outreach Nurse Specialist), Leah Sherry (Haematology Outreach Support Sister), Claire Beevis (Haematology Outreach Nurse Specialist),…

My first year as a CNS

Tela Jiawook-Brooks reflects on her first year as Haematology Clinical Nurse Specialist (CNS) at St Richard’s Hospital, Sussex University Hospitals NHS Foundation Trust. Here she describes her work, its impact on patients, and how she sees the role developing. She also gives hints and tips for other nurses starting out as a CNS. How would…

The role of a nurse consultant

Craig Simon, Haemato-Oncology Nurse Consultant at Clatterbridge Cancer Centre – Liverpool, talks us through his role and explains why having a nurse consultant in the team focuses clinical and nursing staff on patient-centred care. Describe the role of a Haemato-Oncology Nurse Consultant Whilst there is no national agreed standard, it is widely accepted that the…

Introducing self-supported management for MGUS patients

It is generally recognised that haemato-oncology departments are facing an unprecedented and immediate challenge in outpatient services because of the need to follow up with patients with pre-malignant conditions and early-stage diseases. One solution is to improve the utilisation of outpatient capacity by stratifying patients to self-supported management (SSM) to slow down the growth of…

Starting up video consultations and digital clinics

During our CSEP visits at Queen Hospital, Burton, we were impressed by their use of video consultations and how quickly they got them up and running during the pandemic. We caught up with Consultant Haematologist, Dr Hume Ahmad to find out how he is using video consultations and if he has tips for anyone wanting…

Improving patient experience with pharmacy-led clinics

Pharmacy teams are important members of the multi-disciplinary teams responsible for the treatment and care of myeloma patients but are not always part of clinics. Chesterfield Royal Hospital has found that integrating a pharmacist into their weekly myeloma clinics has led to improvements in the clinical service and patient satisfaction. Rebecca Clark, Principal Haematology-Oncology Pharmacist…