The following are areas where we have noted excellent and innovative practice at CSEP accredited hospitals

  • Actively engaging with local support group and creating groups where needed
  • Creating patient information videos in-house
  • Creating a folder that is given to every myeloma patient which includes key contacts, information about myeloma, a diary for appointments etc.  
  • Offering newly-diagnosed myeloma patients the opportunity to speak to other patients for peer support, particularly before stem cell transplants

If you want to find out more, or are interested in developing one of these areas at your hospital, please contact the CSEP team at csep@myeloma.org.uk

Using a database to promote tailored provision of information and support

Amanda Justice, Myeloma Clinical Nurse Specialist (CNS) at Worthing Hospital, reflects on setting up a patient database, and the benefits it has provided to patients, carers, and colleagues in the myeloma team. What prompted you to start a database? When I joined the haematology team as a CNS, one of my first tasks was to…

A nurse-led holistic clinic with MyPos

Alison Pugh, Myeloma Clinical Nurse Specialist at Royal Gwent and Nevill Hall hospitals, talks us through starting a nurse-led clinic using the Myeloma-Specific Quality of Life Questionnaire (MyPOS), and how it supports holistic care for myeloma patients. Could you explain how the MyPOS clinic started and what prompted it? I started the clinic in July…

The value of a myeloma support group – perspectives from a patient, nurse and doctor

The myeloma team at Royal Hampshire County Hospital, and the leader of the Winchester Myeloma Support Group talked to us about their involvement with a support group and explained its value, not only for patients but also for the staff involved. Patient perspective: Mary Mitchell Winchester Myeloma Support Group Leader Could you tell us about…